PAS-SAP – My Pain Survey – for support and partnership
Short description
Chronic pain can be a debilitating condition. Persons who live with chronic pain require multi-modal therapy that combines, for example, medication, psychological support and physiotherapy. Engaging the patient as a partner in the care planning is essential to ensure their care needs are met, and self-monitoring plays an important role in this process. The PAS-SAP project aims to bring together patients and professionals to co-creatively develop and test digital tools that facilitate person-centred communication and care planning between persons living with chronic pain and healthcare professionals.
Additional information
About PAS-SAP
PAS-SAP is a co-design project which involves patients and healthcare professionals (e.g. nurses, physicians, physiotherapists). The aim is to collaboratively develop, test and implement digital tools for self-monitoring and management of chronic pain to support person-centred communication and care planning.
The PAS-SAP research team are based at the Pain Specialist Clinic, Östra Hospital in Gothenburg where we are developing, piloting and evaluating digital tools. Our goal is to create digital tools that are accessible and useful across all levels of care and for different patient groups, to contribute to better pain care across the entire Västra Götalands region.
Why is this project important?
Chronic pain is pain that lasts for more than three months. In Sweden, about 18% of adults report living with chronic pain. Chronic pain affects not only the body but also mental health, sleep, relationships, and overall well-being. Chronic pain can make daily activities and work difficult, leading to increased sick leave and reduced productivity. People with chronic pain often need multi-modal and multi professional therapy to learn to manage their condition. Research shows that self-monitoring with digital tools can help people with chronic pain by reducing anxiety and negative thoughts about pain.
Scientific articles from the project
Facilitating co-design processes: Researchers’ reflective insights on person-centredness in co-design workshops. Heckemann B, Johannson R, Forslund P, Varkey E, Andrell P, Cerná K. Gothenburg, Sweden, May 13-16: The first Global Conference on Person-Centred Care: Knowledge(s) and Innovations for Health in Changing Societies; 2024.
Researchers
Birgit Heckemann, RN, PHD, Associate Professor Institute of Health and Care Sciences, University of Gothenburg.
Paulin Andréll, Assistant Professor, ST physician, Multidisciplinary Pain Center/Medicine Clinic, Department of Medicine, Sahlgrenska University Hospital/Östra, Gothenburg
Axel Wolf, Professor / Senior Nurse, University of Gothenburg Centre for Person Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden, Institute for Health and Care Sciences at Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden, Department of Anesthesia, Operation & Intensive Care, Sahlgrenska University Hospital / Östra, Region Västra Götaland, Gothenburg, Sweden, Institute of Nursing and Health Promotion, Oslo Metropolitan University, Oslo, Norway.
Emma Varkey, Senior physiotherapist, Med. dr, Specialist in pain and pain rehabilitation, Pain Center, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden.