IMPROVE: Implementing person-centred care: Process evaluation of strategies, leadership, and health economics
Short description
IMPROVE has focused on the work done to support the introduction of more person-centred care. Through a case study design, we have followed the change process in the region's development department and 6 care units in Region Dalarna for 4 years without intervention from the research group. The overall aim was to increase knowledge about strategies to support the work for more person-centred care. The project is a collaboration between researchers at Dalarna University and the University of Gothenburg and has been carried out in collaboration with Region Dalarna.
We have studied, for example:
• the strategies used at the care unit level to drive the change process,
• how the concept of person-centred care has been operationalized in concrete care work,
• patients' perception of whether the care is person-centred,
• costs of driving the change process.
Short Description of main results
• Prominent strategies for implementing person-centred care (PCC) included training staff in PCC and creating collaborations between different staff categories (1).
• The care units worked in different ways to include patients' stories, discuss goals with the patient and create parts of or a complete health plan. The link between concrete activities and the overall ethics varied (2).
• Many staff felt that PCC was an unclear concept and that people looked at PCC with different eyes, which meant that they were pulling in different directions (3).
• The patient questionnaire that was developed had mainly good measurement properties (4)
• There was both agreement and differences in how management at different levels perceived person-centered care (5).
• There were clear costs for implementing PCC, which, however, together constituted 0.009% of the region's budget (6).
About the results
IMPROVE reflects how a region worked to implement increased person-centeredness in daily healthcare. The project provides a picture of both opportunities and difficulties. The fact that the participating units worked in different ways reflects the natural differences that existed in contextual conditions.
The research findings indicate that there has probably been too much focus on some strategies to support implementation and that it was very challenging to support staff to develop such a deep understanding of what person-centered care is so that they could apply person-centered care in their daily practice. The results also indicate that the consistency in how different management levels view person-centered care and how it is communicated can be improved.
These findings are important points of reference for developed implementation work. The patient questionnaire that was developed in the project (and its continued development) can provide a valuable tool for capturing the patient's experience of the degree to which care is person-centered. The financial evaluation emphasizes that there needs to be budgeted space for the implementation work.
Continued research
There is a significant knowledge gap regarding which strategies, in combination with given contextual conditions, work well to support the transition to a more person-centred care. Studies are underway where the training of healthcare professionals as facilitators (persons who support and facilitate the change process) is being tested, where these facilitators continue to function as support in their “home” organizations’ work with person-centred care: FaciLitating Implementation of Person-Centred Care - the FLIP-project.
Scientific publications from the project
1. Fridberg H, Wallin L, Wallengren C, Kottorp A, Forsman H, Tistad M. Development and evaluation of the measurement properties of a generic questionnaire measuring patient perceptions of person-centred care. BMC Health Services Research, 2020, 20:960. doi.org/10.1186/s12913-020-05770-w
2. Fridberg H, Wallin L, Tistad M. The innovation characteristics of person-centred care as perceived by healthcare professionals: An interview study employing a deductive-inductive content analysis with CFIR as framework. BMC Health Services Research, 2021 Sep 3;21(1):904. doi: 10.1186/s12913-021-06942-y
3. Fridberg H, Wallin L, Tistad M. Tracking, naming, specifying, and comparing implementation strategies for person-centred care in a real-world setting: A case study with seven embedded units. BMC Health Services Research, 2022, 22:1409. doi.org/10.1186/s12913-022-08846-x
4. Fridberg H, Wallin L, Tistad M. Operationalisation of person-centred care in a real-world setting: A case study with six embedded units. BMC Health Services Research, 2022, 22:1160. doi.org/10.1186/s12913-022-08516-y
5. Tistad M, Wallin L, Carlström E. A comparison of three organisational levels in one health care region in Sweden implementing person-centred care: Coupled, decoupled or recoupled in a complex organization. BMC Health Services Research, 2022, 22:196. doi.org/10.1186/s12913-022-07548-8
6. Gyllensten H, Tistad M, Fridberg H, Wallin L.. Analysis on personnel costs and working time for implementing a more person-centred care approach: a case study with embedded units in a Swedish region. BMJ Open 2023;13:e073829. doi:10.1136/bmjopen-2023-073829
Research group
Lars Wallin, University of Gothenburg and Dalarna University
Malin Tistad, Dalarna University
Helena Fridberg, PhD student, Dalarna University
Catarina Wallengren, University of Gothenburg
Henrietta Forsman, Dalarna University
Hanna Gyllensten, University of Gothenburg
Anna Bergström, Uppsala University
Anna Cristina Åberg, Dalarna University
Eric Carlström, University of Gothenburg